Keep up to date with research news
To receive the latest news on how we’re involving patients, carers and members of the public in our work, sign up to our quarterly newsletter.
If you want to know more about opportunities to participate in research or become involved in supporting the development of research, whether for yourself or on behalf of others, then please connect to the following National Institute for Health and Care Research (NIHR) social media accounts:
Contribute to research online
People in Research is an online list of opportunities for public involvement in NHS, public health and social care research. Researchers use it to find members of the public who want to get involved in research. You can sign up to receive an e-mail alert whenever a new opportunity matches your interests.
There are many other ways to get involved:
Members of the public can help review research news alerts (short updates that share the outcomes of a research study).
NIHR Evidence makes health and care research findings informative, accessible and relevant for everyone. This means we need people like you to help us review research findings and decide whether they should be shared as an alert.
When you 'sign up' you are expressing an interest. You can say yes or no if you are approached to review an alert and you don't need a background in research. A payment of £12.50 is paid to individuals who review an alert. If you are interesting please register as a reviewer on the NIHR Evidence website.
Online courses offer an excellent opportunity to learn whilst in the comfort of your own home. The courses are free of charge and anyone can take part. You can complete each course at your own pace:
What is health research? Have you ever wondered how doctors and nurses know what treatment or care to give? It’s only through health research that healthcare professionals find new and better ways of preventing, diagnosing and treating disease. Today’s research is tomorrow’s treatment. On this course, you will learn how health research happens, why it matters and what to expect if you take part. You will also hear stories from people who have taken part in research; why they volunteered and the difference it made.
Improving Healthcare Through Clinical Research is an excellent introduction to the world of research and why it's so important for our healthcare today, and in the future. You will learn the basics of how research is developed, who carries it out and why it's so important. Ideal for anyone new to research who wants to find out more.
20 million people in the UK live with chronic diseases which can have a major impact on their quality of life and family. Joining the bank means you are helping the future development of healthcare provision and the long-term prevention and treatment of disease.
If you decide to join you will donate a blood or saliva sample, from which your DNA can be extracted. You'll be asked to complete a healthcare questionnaire and consent form. This is so you can be matched to a specific research study. You will also need to grant access to your medical and healthcare records.
Your sample is turned into a unique ID so the research team will not know who you are. If you match their criteria you will then be invited to take part in the study. You decide whether to participate and will only be invited to a maximum of four studies a year.
Volunteer to improve research
Patients, carers, and the public are essential to our work. You are our greatest strength and we could not do our work without your help.
If you have more time, feel confident enough to get more involved or have already taken part in a research study and feel passionate about telling others, you might be interested in volunteering.
If you have direct personal experience of a research topic, whether as a carer, patient or someone who’s used healthcare services, this role could be for you. If the study relates to your paid employment, then this role is probably not for you.
You can sign up to review potential research through our online Reviewer Match service. Once you have registered as a public reviewer, you may be invited to review research proposals for one of two NIHR coordinating centres:
- the NIHR Central Commissioning Facility (CCF)
- the NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC).
The type of documents you may be asked to review include a research or commissioning brief and a research funding application. Find out more
Research Champions volunteer their time to help spread the word about health and care research to patients, the public and especially those groups who are currently less likely to take part in research. Anyone can be a champion, whether you're a member of the public, patient, carer - as long as you are enthusiastic about health research and are comfortable talking to people about it.
What you contribute as a Research Champion will be shaped around your interests, skills and time. Some commit to regular activities while others may volunteer as opportunities arise. Find out more about becoming a Research Champion.
Read about research
Develop your understanding about what health and social care research is about by exploring the journals library.
Hear from others who've taken part and what it meant for them. Participating in research is a positive experience - but don't just take our word for it.
The NIHR asks thousands of research volunteers to feedback on their experience of taking part in research every year. Read the highlights from the latest Patient Research Experience Survey which is used to help identify ways to improve the experience.
Join an online register
If you’re looking for something more specialist or something specific to your location, there are other research registries you might wish to contact. Joining a register means you could increase your chances of taking part in a study. The researchers will contact you when something suitable comes along.
Join Dementia Research
Sign up to Join Dementia Research to help beat dementia.
Our knowledge of dementia currently lags behind that of other major conditions, such as cancer or heart disease. This is why the National Institute for Health Research (NIHR) in partnership with Alzheimer Scotland, Alzheimer's Research UK and Alzheimer's Society have developed Join Dementia Research, a service which allows people to register their interest in participating in dementia research and be matched to suitable studies.
Everybody now has that chance to see what dementia research is taking place, both in their local area and across the nation. The service connects researchers with people who want to participate in studies.